Accessibility Survey
How important is participation in the arts for you or your charge?
Very Important
What is the biggest barrier you face when it comes to attending an art event?
Cost of ticket.
What issues prevent you from taking part in arts activities?
Mobility Issues, it all depends on where the event is held.
What three things might encourage you to take part in arts activities more often?
Less pain. Weather is not snowy. Cost of the event.
What support is most important to you in your work as an artist?
Being paid appropriately for presenting my work.
What advice would you give to any arts organisation planning to develop activities and events for creative people like yourself?
More free events and easier access such as online via Zoom, etc.
What do you personally do to make art accessible to yourself?
Attending local events and online events often.
Tell us about your day-to-day experience of the condition
I experience chronic pain and fatigue often. It is often hard to get motivated when the pain is at its worst.
How do you describe your condition to people who don’t know you?
If I need to I will say that I experience chronic pain often, which limits my mobility. Typically if I go into depth about my condition or name, people don't understand it.
What symptoms do you experience
What's the one thing you want people to know about your condition and/or work?
That if people could see the pain instead of just looking at me like I look good, they would understand that this is real. It is a genetic connective tissue disorder.